Sunday, December 30, 2012

Happy at Home

Celina and Marty outside


Marty's been home since December 4th.

Marty walked over 20 steps with his walker, 2 days ago.
He has been outside two times with his wheelchair where he sits on the sun and enjoys the sound of the fountain and the view in his own back yard

He now weighs 110 pounds, fully clothed. a five pound weight gain in 2.5 weeks

The various alternatives we are using are as follows:

Cannabis oil (the doctor suggested placing a few drops right into his formula in his feeding tube)

TumorX  formula:The only doctor who would tell me his condition is not only hopeful, but reversable and spent 45 minutes on the phone helping me
check this out:

http://www.tumorx.com/cachexia_cancer.html
He was diagnosed as cachetic at Stanford, a scary proposition, but there is help.

Probiotics, he had constant diareah  from the antibiotics and now we can reverse it. Have reversed it.

Spirulina

"Mother's Milks" Marijuana tea. It helps with nausea and anxiety.

Pasteurised eggs with Goats milk (used for starving children in impoverished countries) , we shake it, add lots of cold water to thin it for the tube. Enzymes can't have heat or they are useless.Add the enzymes, probiotics, liquid iron and spirulina.Shake again  Then strain it by putting through the double brass coffee filter to be certain nothing will clog the tube.

and we make a soup at night, usually a chicken soup, well filtered through a brass coffee filter so we don't endanger clogging the feeding tube. I thin it with chicken or beef broth to a consistency that won't clog the tube.

He continues to be at goal with his hourly feeding formula which is 70 ML an hour, more than at any time at any hospital or facility.

Okay so there's no more catheters, or caloric flush, his spirits are mostly better and the team has said they are happy he is doing well, much better than they expected.

His son and daughter have been here and their help is appreciated. Christmas was low key but wonderful.

Visits with friends have kept me from sinking into a deep hole of sadness , one night Julie Rix and Renee Godette came and we even had a sleepover when Renee stayed, THAT was a blast!


Our friend Hayne Bendick continues to save me by bringing whatever we need, even green beans for Marty to feed the dogs



So here we are
hoping to continue to gain ground
I am bone tired with little help. There are caregivers who I spend time training. If I am fortunate they will learn enough that he and I trust them enough so I can leave to bank and run errands. We shall see. I spend the night on the couch and give him what he needs. It's better than the hospital.

I am tired bit oh so grateful. Most grateful especially for the Palo Alto medical Foundation team and their Palliative care team who bring nurses, a doctor and therapists. Could not do any of this without theor wonderful support!

Thank you, Thank you!

And as always

Much Love,

Ginny and Marty

1 comment:

  1. SO glad... I'm lurking you like crazy and let me know if I can bring anything... Love, S

    ReplyDelete