After yesterday it could only get better. And it did, a little bit. Thank God for that.
When I awoke I began the day tired and dragged myself out of bed, showered and drove to Kentfield thinking he had Physical Therapy at 9:30. However for some reason they didn't come. Oh well.
They did arrive after awhile, he had started the weaning mode again , which means any activity can tire him and put him in distress. However, they got him into the chair and he did alright for nearly an hour. Then they put him back on regular settings and OT (occupational therapy) came in and did some exercises with him. He went back to bed, took a nap and all was good. Not a single problem or issue. A good morning!
The feeding formula that Marty had was obviously not being tolerated well, so they have changed it again and raised the amount per hour. I am praying this will be a solution that helps him gain weight and thus his strength.
The team is holding it's breath, hoping he can be accepted to Santa Clara Valley Medical Center. It has such a fine reputation. God I hope he meets criteria there.
I met 3 different wives today with different and interesting (albeit very sad) stories. All of our husbands are in one of those beds tonight and we all spend our days there. A new sisterhood. We arrived alone with them and now we meet one another in the halls or on a bench outside and visit and talk...a new "family of friends" a thread of understanding. Bless them all. So very hard.
Thank you friends for understanding. Thank you for caring.
Love,
Ginny
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